Update: despite multiple tweets and emailing Shane/CBC directly, I never got a response.

Apparently my post about the accessibility of "car-free" and transit for people with chronic illness has now become part one of a series of posts on chronic illness and urban life. I caught something interesting on the CBC the other day. Shane Foxman did a small segment covering a protest held by the Raging Grannies calling for public washrooms in the transit system. You can watch the short video segment here. At the end, he asked for feedback, so here it is.

Public Theater
Photo by Susan Sermoneta

Dear Shane,

The thing that struck me most about the segment was how you seemed to think this issue was funny, or not so much funny, but a bit of a joke. Several of the people interviewed on the issue brushed it off, saying "just hold it" or "be more prepared" or some variation of that response. That indifference was the main sentiment of the bit was baffling, and something I could only chalk up to either complete ignorance, or less offensively, lazy reporting.

Fact of the matter is that the lack of public washrooms in Vancouver, and specifically in the transit hubs and skytrain stations, is an enormous barriers to a large variety of people. The elderly, people with bowel and bladder problems, and of course children, all have varying abilities to "just hold it". It's not a joke, it's not funny - it has a severe impact on peoples' lives.

The Punk Singer - documentary cover imageHave you seen the documentary "The Punk Singer" yet?? It's on Netflix right now, and I loved it. A lot.

Some of you, particularly music lovers, will know who Kathleen Hanna is - she was lead singer of Bikini Kill and Le Tigre, and currently fronts (The) Julie Ruin. She was also one of the founders of the Riot Grrrl movement, which teenaged me growing up in Saskatchewan miraculously had some tiny window into, thanks to lots of MuchMusic, Sassy, and zines.

I was familiar enough with a lot of the bands and history covered in this documentary, but I also learned so much more about everything and how it all ties together. I was enthralled watching through the first two thirds of the movie that detailed the movement and music history, and Kathleen's role in it.

But then the film takes a major turn - one I had no idea was coming, when it reveals that Kathleen Hanna has been struggling for several years with severe chronic illness, eventually to be diagnosed with chronic Lyme disease. She speaks so candidly about how the illness has changed her life - it was actually hard for me to watch parts of it, because I related all too much... I found myself tearing up as she said many things that I've been feeling, and that despite my best efforts, I've continued to habitually minimize and hide behind a brave face.

A funny thing happened yesterday. After I wrote the post about how much I was struggling with answering the call, I posted it to a Facebook group of people who've come together around an online workshop we all took recently - Lisa Congdon's "Become a Working Artist". The first person to respond recommended I read The Artist's Way - the proverbial bible of how to be an artist, as they had been working through it and finding it useful.

Funny thing is I've owned a copy for at least a few years, and though I think I've cracked it open a couple times, I never made it past the intro. Alas, I've often found that when the time is right, the book finally resonates, so I went and pulled it off of my shelf upstairs. Then I sat down, and pressed on through the preamble, and both Introductions (I have the 10th Anniversary edition, so there's an intro before the intro) in full. All the way into the first chapter. 

What do you know - the time was right. From page 5:

Working with this process, I see a certain amount of defiance and giddiness in the first few weeks. This entry stage is followed closely by explosive anger in the course's midsection. The anger is followed by grief, then alternating waves of resistance and hope...

This choppy growth phase is followed by a strong urge to abandon the process and return to life as we know it.

"He who would be what he ought to be must stop being what he is." - Meister Eckhart

I unabashedly love Liz Gilbert. She just did a two part interview with Oprah on Super Soul Sunday, and the first part aired last weekend and is now online for all to see. I highly recommend you watch it. (The second part is coming up this weekend.) This first half is focused around the topic of figuring out what your "quest" in life is, why you're here and how to make it happen.

This part really resonated with me:

Oprah:
Isn't it true though, I knew this for myself, when there came a time for me to leave Baltimore, and everybody around me was saying, "No, there's no way you're gonna succeed." I didn't hear it as much as I felt it - I felt that if I didn't move, from where I was, for whatever I was being called to, here obviously, in Chicago... I felt that if I didn't do it, a part of me would die. I felt that I would just sort of like, not physically die, but that parts of me would sort of shrivel up in some way, and that I would not be emotionally, spiritually, myself. Did you feel that?

This morning I read this article on xoJane about apologizing. The part that stuck out at me wasn't the main point of it, though:

Our reluctance to say sorry when we’ve been wrong often causes more harm than our original offense. We argue, we gaslight. We force the person we’ve harmed to justify, over and over again, their right to feel hurt by our actions, and then we still deny them that. We make them the enemy, we become the injured party. We demand apologies for having to think of ourselves as less than good people. And we don’t learn. - Ijeoma Oluo 

I only learned the term gaslighting more recently, but the phenomenon is familiar. It's something I've lived through over and over. From when I was somewhere around five years old, my feelings were not only invalidated, but I was made to feel like I was crazy, overreacting, too sensitive, too emotional... When I got picked on, harassed, and bullied, I'd get upset - I'd try and stand up for myself, but beneath the surface I was internalizing all of it. Eventually I would crumple emotionally, and run away to cry my face off.

I just came across this video of model Melanie Gaydos from the What's Underneath Project.

What an amazing, humanizing, project and video. Usually stuff like this rubs me the wrong way, but this felt different and lacked that exploitative quality (maybe because it's not a project specifically about disabled/chronically ill people?)

I love the way she talks about her body and her life so much - I can relate to her story even though her personal and health experiences are magnified by the severity and visibility of her illness, and the intensity of the history with her family...

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