• This is a hard post to write. It might be a hard post to read. It might offend, it might confuse. And honestly, if it does either, I'm not really sorry at all.

    I've had a couple brave friends confess to me lately that sometimes when I talk about my health (either in person or online), sometimes they don't know what to say. That they feel bad for what I'm going through and want to support me, but don't know how to do that, or what I need.

    It's hard to talk to people who are chronically ill if you haven't experienced it yourself. (I won't speak for anyone with a terminal illness, as I very thankfully haven't had to go down that road myself). But it's not impossible. All you need is an open mind, and the willingness to throw away your assumptions or beliefs about what they are experiencing.

    Before trying to explain what to say, I want to go through some basics on what not to say.

  • I wasn't going to write this post, but I feel like I need to. I originally didn't know how I could do it without a classic "flame out", but I think enough time has passed that at least I can write it from a fairly removed perspective. 

    As friends and regular readers will know, I'm taking a break from most everything to rest and try and get my health into a better place. I stepped down as co-lead of Drupal's documentation team over a year ago, and left my previous job as a project manager at a web development company last April. Since then, I've been on what I'm calling a "health sabbatical". I haven't been attending any tech conferences, networking events, or much of anything else since then either (aside from occasionally tagging along on trips as the partner of a Drupaller, aka. a "Drupalganger", but not attending the event itself), and I don't plan to anytime soon.

  • Wow, I'm on some kind of blogging rampage! I can't help it, I need to get this stuff out of my brain!

    I posted on Facebook earlier saying:

    I'm really glad that my sensitivity meter is not on overdrive these days, and that I'm starting to just call bad behaviour what it is, instead of feeling like I brought it on somehow and that it reflects on my worth as a person.

    There are a lot of rude people on their high horses these days, who especially use the internet as their platform, who've completely lost sight of KINDNESS. Who would rather be "right" and protect their "image" as popular or competent than show compassion. 

    I no longer want any part of that. KINDNESS is the glue that holds us all together.

  • I guess this could be considered part two of what I needed to get caught up on writing about health-wise here. (Part one would be about the laryngeal granuloma.)

    Adrenal fatigue

    Have you heard of "adrenal fatigue"? There's been a lot of talk about it more recently in alternative health circles, but it's not just one of these flaky reasons to do more yoga and eat some kale. It's a real medical condition. 

  • Our house came with "custom blinds" on every single window in the house. Great! Well, sorta... except they are exceptionally heavy and on wimpy cords, which means some of them have already broken. Not to mention, the bigger ones are extremely hard to put up and down, especially without gouging your hands on the little strings. As fate would have it, all of the windows are non-standard sizes, at least as far as Ikea is concerned (we did manage to buy long curtains there luckily!), so without spending a fortune, the only real option is to make new ones. A challenge I plan to slowly chip away at as long as we live here...

    After

  • I've been drawing more lately, and keep forgetting to actually post the pictures!

    Drawing my favourite flicker

  • [EDIT: I've posted a follow up to this here.]

    [EDIT: there is now a second update here.]

    [EDIT: I've just posted a final update on my LPR adventures. I'm going to lock the comments on this and the other LPR posts now, as I really want people to use the LPR Facebook Group instead of posting here (or emailing me) - you'll get much better responses and support there! ]

    And now time for some health catch up...

  • Goodness, I'm so behind on updates about crafty projects and health stuff that I hardly know where to start! But I'm going to get this one up because it's short and sweet!

    In the last few years, the three kids I grew up next door to in Saskatoon (who I like to think of as my pseudo-siblings) have all had kids of their own (the 4th was born just around a month ago). Since I was actually going to be in Saskatoon at the same time as all of them for the first time in ages, I decided to work on a special project for all the kiddos. It was a surprise so I didn't post any of the photos till just now...

    Letters

  • I don't know how I'd missed this, but Dr. Brian Goldman of CBC's White Coat Black Art did a TEDx talk last year, and it's wonderful. It's called: "Doctors make mistakes, can we talk about that?" (The video is at the bottom of this post if you'd like to watch it in its entirety.)

    On my health pilgrimage, and as part of working on my zine, I've been tracing back through my medical history, trying to connect dots between all the possible factors that got me into this state of less-than-ideal health. I've been researching root causes of various symptoms and ailments, and how they're all intertwined. I've been thinking back to all the various extremely traumatizing interactions I've had with healthcare practitioners over the years.

    One thing is crystal clear: doctors make mistakes. And some of the really good ones are starting to admit it.

  •  I've been meaning to write this post for ages, to tell you all about another one of my little TMI secrets... I have tricky gums!

    Tea Tree Toothpaste

    By tricky I don't mean they are sneaking around setting up practical jokes, I mean my gums are temperamental and hard to keep happy. If I don't floss enough, they get all inflamed and bleedy. And for years and years, if I didn't use Colgate Total (ie. a toothpaste containing triclosan) on a daily basis, they got all inflamed and bleedy. So I used it for probably 20 years.

Pages

Subscribe to Front page feed